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U54NIH · NATIONAL HUMAN GENOME RESEARCH INSTITUTENIH

Community Engagement Core

Maestre, Gladys E. (Contact)·UNIVERSITY OF TEXAS RIO GRANDE VALLEY, TX·2023–2028·ACTIVE
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INSTITUTION

UNIVERSITY OF TEXAS RIO GRANDE VALLEY, TX

PRINCIPAL INVESTIGATOR

Maestre, Gladys E. (Contact)

FUNDING

$330K

YEAR

2023

MOONBASE SCORE

Still being scored

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Abstract

COMMUNITY ENGAGEMENT CORE South Texas is a region with significant health issues associated with complex diseases that are determined by both genetic and environmental factors. It is critical that genomic literacy and participation in genomic research improve if the region is to benefit from recent and future advances in genomics and precision medicine. The Community Engagement Core (CEC) of the UTRGV Center for Genome Research is designed to establish new relationships and extend existing relationships with community members and community-based organizations in order to 1) address community-wide health concerns, 2) promote participation in genomic research, and 3) disseminate genomic research findings. The CEC will work closely with each of the other components of the Center to maximize opportunities for engagement with the community. The CEC will build upon established networks of interaction and trust in the local community that have been developed over many years by Center investigators through both research and health promotion efforts. Through a range of activities, the Core will enhance research capacity by improving participation and retention of participants in genomic research projects. The Core will address four Specific Aims: 1) to assess the South Texas community needs for, priorities for, barriers to, and interest in biomedical and genomic research through focus group discussions, in-depth interviews, and surveys; 2) to build a network of community contacts and enhance community involvement with the Center to improve partnerships and support the recruitment of genomic study participants; 3) to foster communication to enhance dissemination and uptake of research results; and 4) to evaluate the success of the Core, and make adjustments as required to meet community and research needs.

U54NATIONAL HUMAN GENOME RESEARCH INSTITUTEZHG1-HGR-Pthroughneedsexistinghealthprioritiessupportrecruitmentuptakeextendrequiredregionactivitiesutrgvyearsgeneticdiseasesordercomplexrecentconcerns

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