Administrative Data Transfer Masking, Access, and Ethics Core

ABSTRACT: Administrative Data Transfer, Masking, Access, and Ethics Core The National Dementia Workforce Study (NDWS) will be launched by a national team of experts in clinical care of persons living with dementia, survey research, and health workforce research. The goal of the NDWS data infrastructure is to allow researchers and policymakers to ask and answer scientific questions to help build the workforce of clinicians and other professional care providers required by the growing population of persons living with dementia in the U.S. The Administrative Data Transfer, Masking, Access, and Ethics Core will oversee linking of the NDWS survey data with other sources of administrative and secondary data in combinations that can maximize scientific insights while still preserving respondent and facility privacy. Specifically, the Administrative Data Transfer, Masking, Access, and Ethics Core will: 1) Use Medicare, Medicaid, and assessment data to derive process and quality outcomes to characterize care delivery to PLWD for the clinicians, facilities, and agencies in each survey of the NDWS; 2) Prepare administrative and other secondary information sources in data sets that can be linked with NDWS respondent survey data to gain further insights into factors that influence the workforce as well as PLWD care outcomes; 3) Establish guidelines for restricted data access to safeguard respondent privacy.