Chicago Area Surveillance, Statistics, and Analysis Network for Diabetes, with Representative Ascertainment

PROJECT ABSTRACT Diabetes is an increasingly common chronic disease in children and adolescents under age 18 years and in young adults age 18 to 44 years. Previous diabetes surveillance efforts have included (among others) the “SEARCH for Diabetes in Youth Study” and the “Assessing the Burden of Diabetes by Type in Children, Adolescents, and Young Adults” (DiCAYA) Network. The population-based registry approach in SEARCH was considered to be relatively expensive and labor intensive; the DiCAYA network was initiated because of the potential that EHR databases hold to provide efficient processes for diabetes surveillance. DiCAYA advanced diabetes surveillance and illustrated challenges when using EHR data from multiple networks and subsites across the country. This CASSIDY component A proposal, in collaboration with the Chicago Department of Public Health, will contribute data from the Chicago Area Patient- Centered Outcomes Research Network (CAPriCORN). In collaboration with other data contributors in the CASSIDY network, we will apply expert knowledge to develop and to apply the best algorithms for identifying incident and prevalent diabetes (by type) and diabetes complications, risk factors for complications, and medication use patterns. The CAPriCORN network includes many healthcare systems and a large patient base in Chicagoland. During 2020, more than 3.1 million patients (of all ages) visited a CAPriCORN-affiliated healthcare organization. This study is innovative because it will leverage multisite data from one of the most diverse -- in its patient population and in its facility types -- clinical research networks in the U.S. CAPriCORN includes not only the academic medical centers in Chicago but also Cook County Health and the AllianceChicago network of Federally Qualified Health Centers. This study will advance understanding of the differences in the burden of diabetes (by type) by demographic traits, health insurance status, and geographic area. This project will be valuable for both the Chicago Department of Public Health and CDC.